Mission Statement

We stand together with people aging with developmental disabilities.

Our Vision

People aging with developmental disabilities are valued members of the community.

Our Background

The Association on Aging with Developmental Disabilities (AADD) was initially formed in 1989 as a special interest group and became incorporated in 1994. The organization was created to support the increasing needs of older adults with developmental disabilities (autism spectrum disorder, cerebral palsy, epilepsy, intellectual disability, severe learning disabilities and head injuries that occur by the age of 18).

The Need

People, including those with developmental disabilities, are living longer than ever before, and with increased life expectancy come increased challenges in addressing age-related issues. AADD recognizes the growing need for services designed to meet the unique needs of individuals as they are aging and provides individualized supports, depending on the person’s circumstances and desires.

Programs & Services

AADD provides support to adults of all ages with developmental disabilities, with an emphasis on those age 50 years and older. Our goal is to assist individuals in maintaining their independence and support them in continuing to be active members of their communities.

Education

Educating individuals, families, caregivers, employers, support workers, professionals and the community, in the varying issues and needs facing the aging population, is an essential element in ensuring that needs are recognized, understood, and met. AADD provides education through seminars, speaking engagements, an annual conference, and individual assistance and referral services to both aging and developmental disability organizations.

Retirement Services - Individual

Every phase of our respective lives features times of transition. And transition means change, which can be frightening and difficult. But it can also be full of opportunity and wonder! The transition from the work force into retirement is no different. As such, not everyone looks forward to retirement. The reasons vary, but include economic loss, loss of socialization and friendships, isolation, and boredom. And this is just as true for folks with developmental disabilities as it is for folks without them. AADD develops individualized transition plans that are consistent with the wants and needs of each individual, ensuring that people can preserve their sense of self and identity into and through their retirements. In order to ensure a comprehensive plan, we utilize input from family members and others who know the person well. Each retirement plan is custom designed, and some include supports for family members as well.

Retirement Support Groups

To be part of AADD’s Retirement Support Groups is to be a Senior Hotshot! These groups meet at local senior centers and other community-based locations to learn about issues important to seniors, socialize with others of similar backgrounds, develop lasting, caring, supportive relationships, and share a meal.  Being a Senior Hotshot in these groups translates into building and sustaining community and shared identity that align with the priorities and values of the AADD Senior Hotshots.  AADD staff support the Senior Hotshots with participation in these groups.

Circle of Friends

Circle of Friends provides support to eligible individuals living with a developmental disability (aged 50 and over) and a St. Louis City resident) and their older adult family members, to become fully included members of their community, with the intent of reducing the social isolation experienced by this population, as well as the objective of decreasing the stigma associated with individuals with developmental disabilities.  Circle of Friends is an evidenced-based social isolation prevention program adopted from Finland.

WE♥CARE

WE♥CARE is designed for mutual caregiving, where two or more parties are caring for one another. The WE♥CARE curriculum was developed by AADD in conjunction with UMKC-IHD in response to the growing number of mutual caregivers throughout the country, specifically, to support scenarios in which at least one party has a developmental disability. Nationwide, there is a lack of information, support, and resources available to guide caregivers with developmental disabilities in a mutual caregiving arrangement. This curriculum focuses on instilling confidence as a caregiver through skill development, connecting with the community, accessing resources, and learning to identify the needs of oneself and others. It was developed for implementation within organizations that serve individuals with developmental disabilities, WE♥CARE can be facilitated by a variety of personnel, including direct support professionals, organizational staff, social workers, and volunteers. All WE♥CARE materials are available for download at no cost and can be found at https://ihd.umkc.edu/we-care-curriculum/.

Service Areas

St. Louis City
St. Louis County
St. Charles County

Consulting & Private Pay also available beyond these counties

In addition to services specifically designed to meet the needs of older adults with developmental disabilities, AADD provides select services to younger individuals with developmental disabilities, as well.

System Navigation

System Navigation provides a personalized navigation service that supports families, concerned community members and individuals who are lost or struggling with understanding and navigating the complex service system, options for services and the accompanying service delivery systems that may also be needed.

Community Networking and Individualized Skills Development

Through contracts with Case Management, AADD provides individualized one on one support to individuals in accessing their community. This service provides the individual, as well as their family members, with the supports needed to maintain maximum independence. These services range from 1 hour to 40 hours per week, depending on the type of contract and the need.

Social Clubs

Social Clubs is a large group socialization program that meets on Saturday and is open to adults (age 21 and over) with a developmental disability who reside in St. Louis City or County. Participants in Social Clubs have the opportunity to choose from a variety of activities, including dances, bowling, movies, out to eat, wrestling, plays and musicals.

Challenges Unlimited

Challenges Unlimited is a group recreation program that meets after work and is open to adults (age 21 and over) with a developmental disability who reside in St. Louis City. Participants can participate in health and fitness classes, learn new skills, and attend various community and cultural activities.

Supported Living

The Supported Living program teaches independent living skills and supports individuals in developing and maintaining the skills needed to succeed in independent living. These supports may include someone to assist with bill paying, shopping, meal preparation and cooking, housekeeping, personal care and hygiene problem solving, or other individualized needs. This service is available to adults (age 18 and over) with a developmental disability living in St. Louis City.

Private Pay

AADD can provide customized services that are mutually agreed upon to support and serve individuals with developmental disabilities to promote their dignity and independence.

For additional information on eligibility criteria for the above mentioned services, please contact the Association on Aging with Developmental Disabilities by phone at (314) 647-8100 or email at info@agingwithdd.com.